Exploring new territory can be inspiring and enlightening. But for the approximately 750,000 Americans who have been diagnosed with ulcerative colitis (UC), being away from home—and a familiar bathroom—often feels riskier than flying standby.
We’ve all had that feeling of, I really have to go. However, folks with UC might experience this sensation several times during a day—and it often comes on without warning, says Will Bulsiewicz, MD, a South Carolina gastroenterologist and the best-selling author of Fiber Fueled. This factor, in tandem with other uncomfortable symptoms, can mean that traveling may be extremely anxiety provoking. Luckily, a little planning can go a long way.
“There’s no such thing as a cure for UC. But you can reach clinical remission, during which the condition is not active, which is exactly where we want to be at the time of travel,” Dr. Bulsiewicz says. Ideally, you should establish your travel dates well in advance and then collaborate with your gastroenterologist for a personalized treatment plan so your condition will be in remission come trip time. But even if symptoms are still present, that doesn’t mean your plans must get derailed—you just need to pack accordingly.
Packing Essentials for Traveling With Ulcerative Colitis
Dr. Bulsiewicz and Andrew Moore, MD, a Chicago gastroenterologist with Endeavor Health, recommend stocking a carry-on with things like your insurance card, prescription UC medications, and an I Can’t Wait card, which allows access to employee restrooms—by law, in many states—if public ones aren’t available. In addition to these must-haves, there are other non-negotiables you might consider. CN Traveler spoke to jet-setters living with UC to get the scoop on their vacation essentials. Here’s what they recommend adding to your packing list.
Your Go-To Toilet Paper
If you’re going to the bathroom a lot, having great-quality toilet paper is a necessity. But not all hotels have the best options. If you know you’re particularly sensitive, pack a roll you know you like or grab one or two near your accommodations.
Towelette Wipes
Not into the idea of bringing your own toilet paper? Pack some moistened towelettes. One of the frequent travelers we spoke to said she always brings them, especially during flare-ups, because they’re more gentle than standard toilet paper. Dr. Moore suggests seeking out hypoallergenic options designed for sensitive skin, which are usually unscented and alcohol-free, as these compostable wipes are.
A Reusable Water Bottle and Electrolytes
Staying hydrated is a must if you have UC—especially if you’ve had a colectomy or are amid a flare. That said, a reusable water bottle should be on your list—and don’t be afraid to ask for it to be filled in-flight or at a roadside restaurant. If you’re particularly prone to dehydration or traveling somewhere hot, it’s also smart to bring some travel-size electrolytes to mix into your water. The minerals in the powder will help keep your fluid levels balanced.
Your Favorite Snacks
In-flight meals, gas station fare, and road-stop options may be risky, since predicting if unfamiliar foods are UC-friendly is tough. To be on the safe side, bring along some portable snacks you know you can tolerate. Bananas, apple sauce, and rice cakes are travel-friendly options to consider.
Hand Sanitizer
If you’re in an active flare, you’re likely on steroids, and that means that you’re immunosuppressed. So, even something like the common cold can take you down. This makes hand hygiene key—especially on travel days, when germs are aplenty. Sure, soap and water get the job done, but a hand sanitizer can be crucial when you’re not near a lavatory. Pop one into your carry-on—it will definitely come in handy.
Disposable Underwear
These are a great insurance policy if your travels bring you into the wilderness or back roads—and away from public bathrooms. One of the frequent travelers we spoke with said that when she’s in the thick of a flare, she wears a Depend undergarment, which provides peace of mind in case the airplane restrooms are occupied or a rest stop or public bathroom is too far away. Bringing along some small garbage bags will help with discrete disposal and ensure you can “pack in, pack out” in the great outdoors.
Condé Nast Traveler does not provide medical advice, diagnosis, or treatment. Any information published on this website or by this brand is not intended as a substitute for medical advice, and you should not take any action before consulting with a healthcare professional.
